Is Ehlers-Danlos a real disease?

Ehlers-Danlos syndrome (EDS) is a disease that weakens the connective tissues of your body. These are things like tendons and ligaments that hold parts of your body together. EDS can make your joints loose and your skin thin and easily bruised.

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Secondly, can I get a Blue Badge for hypermobility?

If you’re disabled or have a health condition that affects your mobility, you can apply for a Blue Badge. You can also apply for a badge if you care for a child with a health condition that affects their mobility. Councils can charge for a blue badge.

Likewise, people ask, can I get a Blue Badge with EDS? You are automatically eligible if you currently receive the higher mobility rate for PIP or DLAor if you received 10 points for description E under the ‘planning and following journeys’ activity due to journeys causing overwhelming psychological distress, on your PIP/DLA form.

One may also ask, does EDS affect hair?

Ehlers-Danlos syndromes primarily affects the skin, hair, and skeletal system. Symptoms usually begin by childhood or adolescence. Like people with other types of EDS, people with Spondylodysplastic EDS have unusually flexible joints; loose, elastic skin; and easy scarring.

Does EDS qualify for Paralympics?

The Ehlers-Danlos Society is aware that people with Ehlers-Danlos Syndrome (EDS) have challenged discrimination towards them by the International Paralympic Committee (IPC). Our understanding is that application has been rejected solely on the basis of the presence of having EDS.

Does Ehlers-Danlos get worse with age?

Many of the problems associated with EDS are progressive, meaning that they get worse over time.

Is EDS a mental illness?

Moreover, patients with EDS are at a relatively high risk of mental disorders, such as mood disorders, and suicidal behavior accompanied by pain, including headache, muscle pain, neuralgia, abdominal pain, and malaise (17, 37, 46–50).

Is EDS an autoimmune disease?

A much rarer group of connective tissue disorders is called Ehlers-Danlos syndrome. Unlike the diseases noted above, Ehlers-Danlos syndrome is not an autoimmune condition, it’s an inherited disorder.

Is EDS linked to autism?

Recent research suggests that EDS may share strong links with autism. Case studies have previously been published identifying individuals who are both on the autism spectrum and have a diagnosis of EDS.

Is Ehlers-Danlos a hidden disability?

Ashleigh is one of millions of people who live with a hidden disability. In her case, it’s a rare condition called Ehlers-Danlos Syndrome (EDS), which can leave people in crippling pain, suffering from weakness in muscles and tendons. It can cause joints to pop out of their sockets.

Is Ehlers-Danlos becoming more common?

The study searched medical records for diagnoses, and found 1 in 500 medical cases between June 1990 and July 2017 with either hypermobile EDS or another type of EDS. The researchers concluded that hypermobile EDS is more common than has been previously reported, and in fact, may not be a rare disease at all.

What is the life expectancy of someone with EDS?

It is often associated with a shortened lifespan. Among affected people diagnosed as the result of a complication, 25% have experienced a significant medical complication by age 20 and more than 80% by age 40. The median life expectancy for people affected by vascular EDS is 48 years.”

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